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Four years later, my baby’s tumor was so large that doctors recommended terminating the pregnancy – but look at her now



Baby Amelia Kan was diagnosed with a tumour the size of a lemon while she was still in her mother’s womb. Her mother, Hui-Zhi, was advised to terminate the pregnancy as Amelia’s condition was life-threatening. However, thanks to groundbreaking drug treatment and two open heart surgeries, Amelia is now thriving at age four and getting ready to start school in the autumn.

Amelia’s tumour was caused by a rare genetic condition called tuberous sclerosis complex, which causes non-cancerous tumours to grow in different parts of the body. The tumours in her heart were crushing her heart and lungs, making it difficult for her to breathe. Doctors were initially unsure if she would survive, but Hui-Zhi was determined to fight for her daughter’s life.

Amelia was born prematurely at 36 weeks and immediately started on an anti-tumour drug called sirolimus to shrink the tumours in her heart. The treatment was successful, and the tumours almost disappeared within eight weeks. However, the tumours began to regrow after a few months, leading to more complications for Amelia’s health.

Amelia underwent multiple surgeries, including open heart surgery and the installation of a pacemaker, to repair the damage caused by the regrowing tumours. Despite the odds being stacked against her, Amelia’s fighting spirit and the expertise of her medical team helped her overcome each obstacle. She now takes four cardiac drugs a day but is a happy, energetic child who loves playing and attending pre-school.

Amelia’s future is uncertain, but her family remains hopeful that she will continue to thrive. Hui-Zhi describes her daughter as a warrior and a fighter, whose strength and resilience have inspired everyone around her. Despite the challenges she has faced, Amelia is a beacon of hope and a reminder of the power of perseverance in the face of adversity.

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